When Someone Listens…And Acts

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Finally, someone who gets it!!

The past two and a half years have been crazy and I often feel like I am living in a nightmare.  It’s horrible to be so “normal” that doctors can’t see that something is going on and how deeply it affects me.  Thank God I make it to therapy every week or else I would have lost all my marbles by now.

I had a meeting with my caseworker at the brain center and for once I was listened to and not argued with or questioned.  I was allowed to tell my side of my journey and express what I hope to accomplish as a patient and with confidence I was told that everything would be handled for me.  I no longer have to make phone calls, he actually left the room and checked on each of my referrals and got updates on all of them for me.

He even told me that there are programs to help people with brain injuries and that he will get me set up to be tested to see how they can help me get closer to the “normal” I so desire!  He has been the more hopeful sounding person on my journey and I am so thankful that he’ll be working with me through my treatment.

I just want to tell everyone that I am finally being helped.  I have someone’s ear who wants to see me get better.  I am a challenge but I am worth the work.  If I could shout it from the rooftops I would.  As I get my help, my next goal is to make this help more widely available to others who have given up hope.  I refuse to suffer in vain and if I make it to recovery I want to bring as many people with me as I can.

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One thought on “When Someone Listens…And Acts

  1. So happy for you! I know. I think I’m going bonkers sometimes. I feel like this is not my body and hat I can not be in this much pain. But I am. I am angry and beyond frustrated. But right as I’m about to give up, something holds me up and He tells me to keep fighting. It’s a tough road. I can’t even put into words, 1 in 1,000 people have Chiari and it’s hard to believe I’m that 1. I’m so happy you got a glimpsed hope on the form of this man! He’s heaven sent! 😊🙏🏽

    Liked by 1 person

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